Macey is doing good. Although that gosh darn walking thing has really thrown a wrench in what would really make her feel 100%, we continue to hope that the neuro damage will find ways to heal itself so Macey can start walking more efficiently on her own. Other than the walking she has done remarkable. We just had another follow up MRI last week and the results were good. No signs of any new growth and what's left of the tumor that the radiation and chemo eradicated, even looks a bit smaller than last time. Like we have always known, Macey is strong, super-healthy, and surrounded by so much love and support. It all matters and it's been nothing short of miraculous watching how well she has done.
It's hard to believe it's been almost 1 year since the tumor was discovered. Macey will be 21 in October too. She insists that she is going clubbing with her Sisters so she can say she's done it. LOL. If I have to carry her around I will help her make that happen.
Our last visit to the Huntsman Center in SLC was also very positive. Macey's reflexes and coordination on her right side seem much better. Her arm shows the most improvement. Her right arm actually looks and seems completely normal but it's a little weaker than the left. Her right foot is the biggest problem. She can feel, she just can't send commands from her brain to her foot to make the stubborn thing move. Sort of impairs your walking when your foot feels totally numb. Ever wake up or sat on your leg wrong until it's completely asleep then suddenly stand up and try and walk? This is what Macey's leg feels like all the time. But we see it improving. Slow, but definitely improving. We'll take what we can get.
Macey had to deal with wearing those miserable hats while she went through radiation and chemo and she lost most of her hair on top. There was some at the very back that never fell out but by the time she lost most of it, she made Angie cut it short. Well, good news is her hair is still growing like crazy. It's short, but it looks really cute on her. I think she likes this look much better than the bald look. Since the last time I posted her hair had started to grow but was kind of fuzzy and not filled in. Well it's looking fabulous now! I will include a current picture of her. Still as beautiful as ever. Some of you have seen her on Facebook but there are others that read her blog that have not seen this picture.
Our family is strong, there is much love shown, and we continue to support Macey and show her all the love in the world, along with help her in every way we can. Since her benefit video, you can see a dramatic change in her speaking too. She isn't stammering or looking for words as much and I really feel we pretty much have our Macey Moo back in full form.
To all of our friends and family who have continued to pray for our daughter and show the love you have shown, we thank you all from the bottoms of our hearts and want you to know how much it means to Macey and the rest of us. We can't thank you enough and cannot tell you how much we love you back for being so gracious and selfless with your time for Macey. I have seen people come from all walks of life offering love, prayers, and support for Macey and it's a true testament to how beautiful the human spirit really is. Please continue doing what you are doing because it's all working to keep her healthy.
I promise I will try and give you all updates more frequently. It's been awhile and again I apologize. Macey is doing awesome and we are so very thankful. Until then, love you all!
Our Beautiful Macey