Updates and Info for our Macey Moo
Thank you all for visiting Macey's blog. This page is intended to give family and friends the latest updates on Macey. We look forward to everyone's comments and support and also your patience as we will add any updates as we receive them and are able to post them. There has been an overwhelming amount of support and love for Macey and we want all of you to know that we love you too and are thankful to have such great family and friends. Please keep all comments positive and know that our "Miracle Moo" has only one acceptable outcome. Complete and full recovery. Our family will accept nothing less. There will be t-shirts, window stickers and other items available to help support Macey's road to wellness. These items ARE NOT for profit. Only to show the love and support that Macey needs. Thank you all!
Wednesday, August 31, 2011
Well, it's the night before Macey goes in for her first radiation treatment. It's also the first night that she begins taking her chemo pills. Along with these she has to take anti-nausea meds, steroids for swelling, anti-seizure meds, antibiotics, and sometimes Oxycodone if she feels uncomfortable. Mix this with the radiation treatments starting tomorrow and our Moo Moo has her plate full (of pills). All of them serve a purpose and all of them will make her more comfortable and protect her. The doctors were positive that because of her age, great health, strength and good attitude, these treatments shouldn't effect her much other than making her feel a little fatigued. Macey is sweet to the core, but also very athletic, has great muscle mass and has pushed several doctors over when they ask her to push with her legs or arms. She is incredibly strong and this will be a great attribute when she begins to conquer this thing.
We would also like to let the staff at the Huntsman Cancer Institute know we are very grateful to have such a reputable, experienced, confident, and personable team working hard to get Macey well. Dr. Howard Colman, Sean Strope, Jill Pane and the rest have been very caring, very concerned and like the others seem very genuine and helpful. We are blessed to be so close to such an amazing hospital. Thank you all from Macey and our entire family!
Macey and the entire family would like to give a big shout out to Dr. Blake Welling and his staff. Dr. Welling has been so unbelievably kind and caring. Not only is he heads and tails above the rest in the medical world, but he is profoundly altruistic and genuine. Just want to give one example and we'll follow it up with pictures tomorrow. Dr. Welling got Macey and our entire family tickets to the U of U opening game against Montana tomorrow for both the pre-game (sidelines) and sideline tickets for the game! Can you believe this?? We are all excited and even visited the Red Zone U of U store in Layton and bought a bunch of clothing so we will be representing in full attire and colors. Again, from the bottom of our hearts to you Dr. Welling, thank you so much for being such an amazing doctor and friend.
Yesterday was an emotional and difficult time for Macey. Knowing you are sick is one thing but coming to terms with the reality of it everyday can present many challenges. Just like the doctors have said and we have read, Macey has good days and bad days. We showed up at McKay Dee hospital yesterday so we could talk to the radiation doctors about her treatment plan and to get the required tasks completed so she can begin. She had to have an MRI and CT scan performed again so they can get the necessary angles and 3D views for the actual aiming of the radiation. This is a targeted radiation and it will require Macey's head to be completely still. For this, they molded a plastic, mesh, cage-like device that fits over her face and keeps her attached securely to the radiation machine as it sends beams pointed directly at the tumor. Seeing this thing after it was made looked like something along the lines of a bird cage shaped like Macey's head. When they wheeled her out after completing this process, she saw us and just broke down. Again, the reality of it all setting in and becoming very upsetting for her. As her parents, it's one of the most difficult things we have ever faced in our lifetimes. Our girls' are our world. We live for them and we do all we do for them. Macey is young, strong, healthy and without a doubt, we are going to conquer this thing. Macey begins treatment on Thursday Sept 1st and 3:15 p.m. The treatments only last about 15 minutes but she has to go 5 days a week for 5 weeks. Macey will also be taking an oral form of Chemotherapy during the radiation treatments.