Updates and Info for our Macey Moo

Thank you all for visiting Macey's blog. This page is intended to give family and friends the latest updates on Macey. We look forward to everyone's comments and support and also your patience as we will add any updates as we receive them and are able to post them. There has been an overwhelming amount of support and love for Macey and we want all of you to know that we love you too and are thankful to have such great family and friends. Please keep all comments positive and know that our "Miracle Moo" has only one acceptable outcome. Complete and full recovery. Our family will accept nothing less. There will be t-shirts, window stickers and other items available to help support Macey's road to wellness. These items ARE NOT for profit. Only to show the love and support that Macey needs. Thank you all!

Tuesday, September 25, 2012

Macey today

Hey everyone, again time to give a few updates about Macey.  We started her in a well needed neuro-physical therapy.  The other therapies we have taken her too don't seem to really specialize in brain tumors.  So this particular rehabilitation center specializes in this type of treatment and we could tell from the moment the therapist started with Macey that they knew how to deal with her situation.  One problem.  The minute we started Macey in this program she started feeling weird.  She has been very emotional the last few weeks and keeps saying she feels dizzy and not right again.  These were the things she said in the beginning before we knew of her tumor.  So needless to say this is upsetting to hear and scares us some.  We called her doctors at the Hunstman Cancer institute and they said, the last MRI, which was only a couple weeks prior, showed no new growth and that they didn't think her symptoms were tumor related.  So what is it then?  We have postponed her treatments until she starts feeling better but have had her exercising at home and riding the recumbent bike like they suggested for her. 

The dizziness and feeling of dream-like reality continues to bother Macey.  Her doctor called in a prescription for antivert to help with the dizziness.  Not sure we liked the effects of this drug.  Made her almost zombie-like and as usual with most psychosomatic drugs, tired.  Is there not something she can take to help her that doesn't turn her into a vegetable?  Other than than those symptoms, she seems to be ok.  It seems like she has been a little slower this week walking and I've noticed some changes in her.  With a recent MRI showing nothing new, we continue to stay positive that this is just another one of those stages that will come and go and that she will be fine.  She has an MRI scheduled for the middle of October.  Hopefully we'll hear and see more good things.  Macey turns 21 on the 21st of October.  Remember, she was 19 when she was diagnosed and when we first heard the news was wondering if she'd see her 21st bday.  She will see her bday and many more.  We are determined. 

We are trying to get Macey scheduled to attend the Cancer Treatment centers of America in Tulsa.  Seems to be a lot of good things about this hospital.  They are a fully encompassed treatment center.  Meaning they deal with treatment, rehab, diet, counseling, everything.  I hear the doctors are good and we really feel another set of eyes and opinions on her condition couldn't hurt.  So we are finding ways to plan this and get her there ASAP. 

Things have been a little difficult for us recently too as a particular manager where I work decided that my daughters condition was not conducive for his plans with me at work.  So he pushed me out, forcing me back to SLC.  It's a good and bad situation.  It's good because I'm home and I'm with Macey everyday.  It's bad because financially it cut our income in half.  We were already just keeping our heads above water so the  new challenges this presents are so daunting that if I think about it, I will literally go into a state of panic.  Apparently having a sick child, a family dealing with life changing, emotionally draining events wasn't enough for us as a family.  A very self-centered, non-compassionate (expletive) decided we needed more sh** to pile onto our already mounting pile.  So thank you.  You know who you are.  And as the world has always been so kind to give back in the form of karma, I truly feel you'll get yours.. 

We march on as a family and we fight through each day and try to find the goodness in the hand we have been dealt.  We normally do very well since we are so close and surrounded with loving friends and family.  We all have our down days and Macey still gets emotional and cries.  Can't blame her.  She has dealt with this far better than most I'm sure.  Thanks again for the continued love and support.  We'll keep everyone posted as to upcoming charities and events to help in the continued care for Macey. 

Peace and love. 

No comments:

Post a Comment